2022年6月27日星期一

2022年在家上班第二十五周(6/20/2022)

 周一(6/20/2022)

真沒有想到還得到了一天的休息。周末的時候問了一下姚剛他們Rixi的情況,他們說7/4的長周末要出門,問我們可不可以看Rixi。我說當然可以。

早晨也是在7點之前醒過來。腿上的潰瘍始終不好,一直結了痂就破的樣子。唉。

一天在厨房裏忙活,一天的飯食需要準備。因爲不上班,就給她準備一下omelet。花菜肉片,韭菜炒鷄蛋。給她還香煎了雞胸脯。我把剩下的韭菜處理掉了,準備了點蝦仁,這樣包了一包餃子。沒有想到還多了一點點餡,準備下次再有韭菜的時候再説吧。

又準備了豆漿,已經將近一個月沒有喝豆漿了。

中午的時候,她去健身房,我就出門走了一圈,可以走到21分多一個英里,走了快要一個半英里,希望能慢慢build tolerance。



周二(6/21/2022)

一早起來,想起來今天要陪她去做換機油的服務,於是準備好,穿上義肢,等著她下樓來。昨天晚上她將近4點才回來,今天早晨怎麽起得來。

結果她安排今天去跟小朋友吃午飯。我也不用給她準備了,本來是準備做韓國炒麵的,反正也是一大鍋,於是就準備給她第二天吃。

結果她的朋友并沒有出現,說能否借我的車,我拒絕了,我覺得她太被spoiled了,主要是不能想得是麽就是啥。我說我可能會去圖書館。
的確是去了圖書館。而車行來電話說是還需要修理其他的一切部件,我也都同意了。很多時候不是說都是按照你的步驟和計劃來運行,我只想讓她開的車至少保證是安全的,所以我毫無條件地同意了,所以一下子修理費又是400多。

新的圖書館明亮寬敞很多,很多study room,只是對我可能也都用不上了。少兒區域也擴大很多,很是羡慕。

在中文書的區域來回翻看了一些,還在New Material那裏借了一本日本人寫的有關飲食的書籍。
滿載而歸。


周三(6/22/2022)

溫度有所下降,感覺還是滿舒服的。結果中午出門后在回來的時候感到很不適,到家之後真的還是嘔吐了。不知道是不是化療的副作用還是怎麽回事。早上是吃了一個羊角麵包加牛油果,是不是一下子脂肪太多,吸收不了了。吐出來是紅的,怎麽也想不出來自己究竟吃了是麽,終於想起來是草莓,至少還能解釋得通。

晚上給比爾燒了螺肉。第一次吃,感覺很chewy,

中午出門走路的時候看到長得高高壯壯的那株番茄苗被鹿吃得一乾二净,我哭




周四(6/23/2022)

想出門的時候居然發覺下雨了。冒雨出門走了一圈,回到家換了衣服。

為了想提高每天能夠走的距離,下班前又出門走了一圈,取了郵件。結果收到jury summons。我行動力太强,立刻就去填寫了網上的調查表。
謹雯最近情緒一直不高,為社會上的負面新聞所牽動。我給了她上面這段話,雖然不是時時刻刻都能安慰到我,但是至少在念的那幾秒鐘,心裏還是敞亮的,得到了安慰。




周五(6/24/2022)

所以行動力也不能太強。事情到來了,立刻就辦也不一定是好事情,還是給自己一個緩衝的餘地比較。

一早起來就因爲工作上的事情跟M搞得不愉快。我現在根本沒有任何需求,只是想在本職崗位上做得好一些,能夠保住工作和醫療保險。

昨天在網上填寫了questionnair之後,收到我的request被deny的email,說需要醫生的
給法院寫了email,問他們怎麽個情況,按照他們的做法,我屬於不打自招,所以他們的information都是由我來update了,所以說選的就是我。結果自己表達不清,對方就把電話挂掉了。

於是一下子就覺得悶頭悶腦的。給海雲發了微信,沒想到她立刻就打電話過來了。説了說,就舒服了很多。

晚上等她打工回來,給她做了餃子,她還是喜歡燒賣。於是撐著拐杖去外賣的冷凍箱裏拿了肉末和蝦仁,想著第二天她還要在家裏吃法,拿出魚片和蝦仁。

等她回家后,配她吃點東西。她在抱怨她的工作,餓著肚子,後來讓她喝了點水果酒,她的情緒就好一點了。

The Misery Filter

At Christmas in 2015, the psychiatrist and blogger Scott Alexander wrote a post about his experience treating people “in a wealthy, mostly white college town consistently ranked one of the best places to live in the country.” Despite being in the sort of place that both the intersectional left and the populist right would reasonably identify as wildly privileged, Alexander wrote, his practice was dominated by people with “problems that would seem overwrought if they were in a novel, and made-up if they were in a thinkpiece on ‘The Fragmentation of American Society.’ ”

He went on to argue that these encounters were not just an artifact of his vocation — that actually, by virtue of being a psychiatrist, he was getting a more accurate look at how bad things can get in a comfortable part of the United States than a basically healthy person circulating among basically healthy people might realize.

For personal reasons his essay resonated strongly with me at the time, and particularly his point about how Americans tend to “filter for misery” in the same way we filter for political agreement in our increasingly self-segregated social worlds.

This misery filter is partially a function of the other forms of segregation. Think of how upper-class America didn’t notice the crescendo of misery that became the opioid epidemic until the Trump phenomenon sent journalists out to the hinterland looking for an explanation. Or how partisanship encourages us to downplay suffering within the rival political coalition — to imagine Republican “whiteness” as one long suburban barbecue, or life on the liberal coasts as all Georgetown cocktail parties and welfare-queen idylls.

But I think Alexander is right that the filter is also part of life within the most successful social enclaves — especially for chronic miseries that don’t fit an easy crisis-resolution arc. We tend to be aware of other people’s suffering when it first descends or when they bottom out — with a grim diagnosis, a sudden realization of addiction, a disastrous public episode. But otherwise a curtain tends to fall, because there isn’t a way to integrate private struggle into the realm of health and normalcy.

Some of this is inevitable and necessary. You cannot fulfill your own obligations while constantly stewing in other people’s pain, and a community that wallows too much in suffering can actually spread it, by encouraging the healthy to go down the slide toward addiction or depression because everyone they know is sliding first.

But a strong filter also creates real problems, because it effectively lies about reality to both the healthy and the sick. It lies to the healthy about the likelihood that they will one day suffer, hiding the fact that even in modernity the Book of Ecclesiastes still applies. It lies to the sick about how alone they really are, because when they were healthy that seemed like perfect normalcy, so they must now be outliers, failures, freaks.

And this deception is amplified now that so much social interaction takes place between disembodied avatars and curated selves, in a realm of Instagrammed hyper-positivity that makes suffering even more isolating than it is in the real world.

These thoughts are in my mind because I’ve been reading “Before You Wake,” by the conservative pundit Erick Erickson, a memoir addressed to his children and inspired by the descent of different life-threatening illnesses upon himself and his wife.

I found the book particularly striking because, like many people in our profession, I know Erickson virtually but not really in real life — which means, in fact, that I don’t know him, I know only the pugilistic piece of him that shows up for fights online. So reading his personal story is a small experiment in weakening the filter, in shaking off the spell of simulated life, of letting a person’s suffering give you a glimpse of them in full.

But beyond the virtual/real distinction it’s also interesting to watch a writer try to impart a sense of what a Via Dolorosa is really like, of how you make sense of it and bear it, to people he otherwise tries to protect from suffering — his children.

Because this seems to me to be the signal failing of modern education — visible among my own peers, now entering the time of life when suffering is more the weather than a lightning strike, but especially among the generation younger than us, who seem to be struggling with the contrast between what social media and meritocracy tell them they should feel and what they actually experience.

In America we have education for success, but no education for suffering. There is instead the filter, the well-meaning deception, that teaches neither religious hope nor stoicism, and when suffering arrives encourages group hysteria, private shame and a growing contagion of despair.

How to educate for suffering is a question for a different column. Here I’ll just stress its necessity: Because what cannot be cured must be endured, and how to endure is, even now, the hardest challenge every one of us will face.


周六(6/25/2022)

發現了這個小家夥會有直播。
給謹雯拍了一張自己染過頭髮的照片。歲月不饒人。

早晨出門,走了兩個英里。回來以後滿身大漢,本來想擦個身的,最後還是決定洗個澡才能舒服點。結果就是一天都不想出門了。

在厨房裏忙著,做了她要吃的燒賣。

燒了兩個菜,茄汁魚片,西蘭花蝦仁。看來她是餓壞了。茄汁魚片後來覺得不太夠,就加了點豆腐。

晚上他跑了一次Lows,說是去買欄杆了。


不知道這是不是今年僅有的收成了。

















周日(6/26/2022)

周末一直在看"The Beauty of Dusk",因爲很有共鳴,所以看到最後合上書本的時候,熱淚盈眶。

又是一個艷陽天。早晨起來第一件事情就是穿上義肢出門走一圈。在此之前,跟麗娟微信了幾句,跟我想象的差不多,她坐骨神經還是疼痛,說是去不了farmer's market,目的地很明確地說,鵪鶉蛋她已經買好了。

走了還是汗津津地回到家,沒有去洗澡,覺得在樓下擦身能對付。

不想出門。不必要出門都放棄了。
他一早出門負重行走,然後回來說是準備裝圍欄,但是又發掘圍欄的空隙太大,就跑去我和Rixi買鷄蛋的地方又去買軟圍欄。

下午他說出門去買自行車零件,我順便讓他去老朱農場幫忙買點蠶豆,結果買了十磅蠶豆,十磅紫薯。自行車店沒有開門。他出門之前也沒有確認一下,不過如果確認了,他也不會跑老朱農場了。



晚上她又如何繪畫的直播。聼她講述她學畫畫的心路,才發覺其實有挺多事情,我都不太知道。不過看著她對著鏡頭那麽自信,很為她高興。


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